Battling Buffoonery

My career is based on communication and empowerment within the medical world. I educate on the patient/family side and the medical professional side. It takes understanding and empathy from both sides of the stethoscope to optimize communication. It takes communication between both sides to bridge perceived power differentials. It takes work on both sides to change a culture of uneven power dynamics.

I read two Facebook posts within the past few days dealing with a culture issue that needs changing. This is a matter from the “general” as opposed to medical world, but that which is present in society-at-large certainly spills into medical or any other subset of society.

The first was written by a woman in her early forties, discussing the details of recent times (while in retail establishments) she’s received unwanted amorous advances from strangers (including a time when she had her young teenage son with her, and they included her son in the harassing conversation). The second post was by a friend whose 17-year-old daughter, who works weekends at a toy store, has been receiving come-ons from customers while their children play in the store. Both women experienced definite “ick” feelings as they were being harassed.

Thankfully, the majority of public interactions are not icky. These incidents referred to above are happily the exceptions to the general rule of civilized, respectful behavior. But although they are exceptions, they are not rare exceptions, and they are threatening.

I am close to the 17-year-old young woman. I feel perfectly comfortable offering her advice. And while I would like to tell her to respond to inappropriate comments with something to the effect of, “I cannot figure out why you would think it’s ok to say that to me,” I am hesitant to advise her to engage these people at all. I’m also hesitant to tell her to walk away. The first option places the power with her, while the second seems more like it leaves at least some power with the tasteless cad.

The problem is, it’s difficult to know whether the label “tasteless cad” is sufficient and accurate. If the issue is simply a lack of manners and a poor sense of humor, then perhaps pointing out the rudeness will help prevent the person from creeping out someone else. But what if the demonstrated disrespect reflects a fundamental disregard for the personhood of those harassed, and attests to a sense of entitlement? A challenge to that entitlement could theoretically provoke more of an assertion of power. Tough for a 17-year-old to gauge when it’s even difficult for a forty-something-year-old to do.

There are protections set up in schools and in workplaces (to prevent harassment from bosses or other employees), but there are no systematic protections regarding interactions with the general public. I would certainly report such matters to business management. A good manager will work to provide a safe environment for both employees and customers. Something as simple as placing a prominent sign reminding people to show respect to others can help establish expected conduct. Management can also ask someone to leave.

It’s more difficult when a store owner is the one engaging in the misconduct. If it’s the owner, I’d avoid that establishment and would warn others. A complaint to the Better Business Bureau or to the state Attorney General’s office may in some circumstances be warranted.

And for everyone’s well-being, we need to teach our kids by always modeling respectful speech and behavior – not reducing people to sexual objects, not describing relationships as conquests, and not indicating that it’s ever ok to make suggestive comments to strangers. If we witness inappropriate behavior, we need to show support to the person being hassled, and when possible we need to report the harassment (to management, to administration, etc., depending on where it is occurring). We need to hammer into our kids that it is never ok for others to harass them.

It’s better than it used to be, and we can all work together to keep improving our world. It will never be perfect, but the exceptions to civility should become increasingly rare.

Springing into the Pharmacy

Spring is here (although it may not yet feel like it). The days are getting longer. The temperature is slowly getting warmer. Green stuff will start poking through the ground and popping out on trees. We’ll see more of our neighbors, since they won’t be trying to get from their cars into their houses (and vice versa) as quickly as possible before they freeze.

Pollen allergies will start up again. And grass allergies.

So many people suffer from the watery, itchy eyes, itchy, runny nose, sneezy, general ickiness of seasonal allergies. And there are so many remedies in the aisle of the pharmacy – no prescription needed.

Several years ago, I spent the better part of an afternoon exasperated with our youngest son, who was maybe eight years old at the time. This was quite unusual. Unheard of, actually. Son number three tends not to piss us off. But he was acting really obnoxious. Not listening. Acting unruly. I was getting angrier at his behavior.

Then my husband (an engineer, mind you, not a doctor) said, “Didn’t you give him that anti-histamine a few hours ago?” Riiiiiiiight. He had had a reaction to some mosquito bites, so his pediatrician had told me to give him cetirizine to help quell the itchy welts.

Wonder-Doc over here hadn’t realized that her kid was reacting to a medication that affects the central nervous system.

As soon as my husband pointed out the obvious, my anger disappeared (replaced with a healthy dose of guilt), and I did a much better job of soothing my agitated son. And as soon as the drug was out of his system, he returned to his normal, sweet self.

The fact that something is available over-the-counter does not mean that it is completely safe/benign/without risk. This holds true for allergy meds, cold meds, or any medication for that matter.

Always read the bottle of a medication to see what potential side effects might be. Don’t drive when taking a medication unless you know how that medicine affects you and you are certain you can drive safely. Don’t take more than the recommended amount. Remember that any medication can interact with any other medication and that alcohol can interact with any medication.

Different people react differently to different things. Our middle son had taken that particular anti-histamine without any negative effects. Don’t assume that if a certain medication is fine for one person that it’s fine for another, or that if one person has difficulty with a particular medication that it’s bad for someone else. Talk to your doctor and your pharmacist with any concerns or questions.

A couple weeks ago, I was at the tail end of a cold. Our family was out in the car, and my eyes were itching and running non-stop. I had a post-nasal drip going and I was sneezing every two minutes. It was miserable. I needed an anti-histamine.

So we swung by a CVS and I picked up a small bottle of disolving-tablets-no-water-needed cetirizine. I took one. Within about an hour my eyes were significantly better and my sneezing frequency was cut in half. But for a short while I felt a little drowsy – almost as if I had had a glass of wine.

Available-without-a-prescription does not mean without-potential-consequences. Only take something if you really need it. Read labels. Ask questions. Watch for reactions. Listen to your body.

And enjoy getting back outside!

 

 

Colored Perception

Late last night, I saw a Facebook post with the picture of a dress. The dress was blue and black. The blue was a deep, pretty blue – kind of a dark royal, but maybe a tad purple-y. The black was one of those blacks that could maybe be a really deep brown if you looked at it closely enough, but if you were forced to call it you’d probably say black.

Years ago, our oldest son came into the kitchen with a profoundly amazed look on his face. “Mom, Dad – I just thought about something. We might not see the same thing when we look at something. I mean, when we both look at something and say ‘it’s red,’ I don’t know that the color it looks like to me is the same as the color it looks like to you. Your red could be my blue.” This led to some wonderful discussions around the dinner table. We talked about how people can perceive and interpret things differently. How we never know for certain what is in someone else’s head. We looked at all sorts of optical illusions on the computer and in books. We discussed how an outline could be seen as a vase or as two faces in profile. How two lines that were exactly the same length could be made to look different with certain contextual cues.

But with all of this, the one thing we came back to was that everyone could at least be consistent in their labeling, even if their internal interpretations were different. No matter how we perceive blue, we know to label it as blue. The contextual clues to lengths of lines or shades of gray in shadows are pretty much universal. We can all flip the vase view to a face view, and vice versa. There is consistency, and we can see how our minds can be tricked with subtleties.

And then there was the picture of the dress. It wasn’t subtle. The colors were unambiguous. And I read the introduction to the picture that my friend had posted – she said her family was freaking out because all of them saw a black and blue dress, but she was seeing a gold and white dress. I read through the comments of her friends, and there was actually a split – people were either seeing black and blue or gold and white.

I called my husband over to the computer and asked him the colors of the dress. He looked at me strangely, and said “white and yellowish-gold. Why are you asking me?”

This man and I have been married 21 years. We chose dish colors together. We’ve picked car colors, party colors, ties, shirts, dresses – we are consistent in our color labeling.

And yet.

We both thought that the other was teasing. That the other was in on some hoax.

We called in our younger two boys. The youngest came in first. They both saw blue and black.

We then Googled “blue and black or white and gold dress” to see if there was an explanation out there. We found a few articles – something describing different types of cones (the retinal cells which pick up color), something talking about light settings on computer screens, all sorts of hypotheses. This picture had gone viral and everyone was trying to wrap their minds around it.

While looking through these articles, explanations, comments, and hypotheses, something even weirder happened. As I looked at the picture, the blue lightened considerably. The black lightened to a light, golden brown. Before too long, I was seeing a clearly gold and white dress. Our sons were still seeing blue and black.

Today, I still see basically white and gold, but it is a blueish white or light blue, and a darkish gold. Try as I might, I no longer am able to see the deep blue and slightly brownish black I had first perceived. Nor do I see the distinct white and gold I briefly perceived. What I see now is ambiguous.

The hypotheses will need to be tested as to why this dress photo defies our normal understanding of at least labeling consistency (even if not internal perception uniformity). Of the explanations I’ve seen so far, it makes sense that it will turn out to be some sort of contextual interpretation.

But this flips some very basic presumptions on their head. We presume that those of us with intact color vision have consistent labeling of basic colors. We presume that when we see something with our own eyes we know what we’ve seen, or at least our perception is consistent with specific known visual or psychological cues.

This picture obviously hits at the edge of some specific perceptual border. People either fall on one or the other side of that border. Some of us slip over that border and see it from the other side. And I am guessing that I’m not the only one now stuck on the line of ambiguity.

How many other things in this world and in our lives fall on such borders? What other visuals, aside from colors, have such lines of demarcation? What other senses might fall prey to such lines of distinction? What thoughts? What concepts?

This drives home deeply the importance of communication. Of consciously working towards empathy. Of telling people where you’re coming from. Of asking others what they feel, what they see, what they think.

We cannot presume.

 

Bigoted Refusal of Care is Deplorable

First, do no harm.

We don’t all recite the original Hippocratic Oath, but we all pledge to care for our patients. And we pledge first to do no harm.

The news broke this evening of a doctor in my state who refused to take care of a baby because her parents are lesbians.

I am beyond mortified that someone in my profession, and in my country and my state, would do something so hateful, so bigoted, so utterly disgusting.

How dare this woman.

How dare she.

If it were up to me, she would lose her medical license immediately.

I feel physically ill after reading this news report. I expect more from professionals. From doctors. From people who have pledged to care for humanity. From people who have pledged first to do no harm.

Regardless of whatever hateful laws are in place or being pushed into place, we physicians have a moral duty to care for people. We have a moral duty not to discriminate.

I am so disgusted that I have a hard time calling this woman a doctor. She disgraces the profession.

Bigotry is harmful.

There is no place for it in medicine.

That is all.

Vaccine Resistance – This is a long one….

Vaccines. Diseases. Measles. Big Pharma. Anti-vaxxers. Medical Industrial Complex. Individual rights. Herd immunity. Selfishness. Stupidity. Toxins. Chemicals. Autism. Encephalitis. Mercury. Thimerosal. Febrile seizures. Science. Anti-science. Pseudo-science. Alternative. Natural. Money-grubbing. Lying. Evil.

My Facebook feed has been blowing up with posts and memes related to vaccination. The topic cycles through the news and social media regularly and is prominent at the moment in the wake of the recent/current measles outbreak originating at Disneyland in California. People are angry. People are defensive. People are offensive.

I’m pensive.

Over the past several decades, vaccines have prevented millions of deaths. They are effective. There is no question about this. Current vaccines are exceedingly safe. There is no question about this.

Vaccines are not 100% effective. We need a high communal vaccination rate (generally 95% or more) to ensure “herd immunity,” which stops widespread epidemics and protects those who cannot, for medical reasons, be vaccinated, and those for whom the vaccine did not generate adequate immunity. Vaccines are not 100% risk-free, although the risk of a serious reaction is extremely small (for example, about a one-in-a-million chance of an anaphylactic allergic reaction to the Measles/Mumps/Rubella vaccine). Many vaccines have minor side effects, such as soreness at the injection site or a mild fever (the fever actually is a sign that your body is mounting an immune response to the immunization). The diseases the vaccines protect against have significant rates of severe complications (encephalitis – an inflammation of the brain which frequently leads to permanent damage, pneumonia (the most common measles-related cause of death), paralysis, sterility, blindness, deafness, death, etc., depending on the specific disease).

The scientific and medical establishment is in overwhelming agreement that everyone who can be immunized should receive all recommended vaccinations. The benefits far outweigh the risks. The vast majority of people in this country follow these recommendations.

And yet.

And yet we have pockets of people loudly protesting vaccines.

And some people listening to these loud protests and quietly forgoing immunizations for their children.

And this is a problem.

From the community health and welfare standpoint, this is a problem because there are enough people forgoing immunizations to impair our herd immunity. Those who are most vulnerable (people undergoing chemotherapy, people on immunosuppressive medications, babies too young to be immunized, people with immune deficiencies, people who are too frail or ill for their bodies’ immune responses to function properly, etc.) are at risk. And because the vaccines are not 100% effective, even those healthy folks who are fully immunized are at higher risk because of the decrease in herd immunity. So clumps of folks refusing to immunize will affect other people, not just their own families.

And because we are human, even if the herd immunity issue were not in play (although it most definitely is), many who understand the science and the importance of immunizing and the benefits versus the risks to the individual (putting aside, for the moment, the community as a whole) would still be frustrated by the failure of groups of people to vaccinate their children. Because even if (again, ignoring the public health risk for the sake of this argument) we could say to ourselves, “if they don’t want to immunize themselves that’s their problem – they can suffer from and potentially die from preventable diseases if they so choose,” (which I personally have a hard time saying), we still care about the welfare of their children.

And there’s the rub.

Because that is also what motivates the vociferousness of some of the people who loudly oppose vaccines. Not all of them, but some of them.

And understanding motivation is essential to understanding and communicating with people.

What doesn’t motivate people is calling them stupid.

At this time, I will not speak to the few people within the official medical establishment (M.D.s and D.O.s) who speak against, discourage, or otherwise buck the positions of the American Medical Association, American Osteopathic Association, Centers for Disease Control and Prevention (CDC), World Health Organization (WHO), American Academy of Pediatrics, American College of Physicians, etc. My opinion and analysis of these people will be a topic for another day.

I will also not speak at this time to people who have not undergone the rigors of scientific medical training who hold themselves out to the public to be healthcare practitioners and give advice contrary to scientific medical consensus. This will also be a topic for another day.

What I will speak to right now is the vaccine resistance (and vigorous promotion of this resistance) that is found within small proportions of the general population.

The people I am speaking about certainly love their children. They are motivated to protect their children. They are motivated to protect other people’s children. They are motivated by fear. Deep fear.

I understand fear. And I understand fear of vaccines.

Most of our immunizations are done by injection. A needle is stuck into us (or our child) as the vaccine is injected into our muscle. It hurts.

We have evolved to resist being stuck and injected – we reflexively try to avoid bees and wasps. That resistance for most of us is easily overcome with our intellectual understanding of immunization, but we are definitely actively resisting a natural impulse when we allow ourselves to be injected. Sometimes fears can be too strong to overcome with our own intellectualizing and we need a little help.

Frequently, young children will cry when given injections. It’s awful to see your child in pain. Yes, that pain is to protect him from something that would cause much greater discomfort and could cause grave harm or even death, but the injection pain is right here, right now, and real, while that disease potential is not right in our face and we don’t frequently see the awful diseases that we once used to (due mainly to vaccination).

A child will frequently be fussy after vaccinations – her leg or arm hurts where she was poked. She may have a fever for a couple days. She may sleep poorly while she feels icky. And a parent feels awful, because the parent gave permission to someone to do this to her. This ickiness of vaccination is right in front of the parent, while the disease being inoculated against is not in front of the parent.

Although severe vaccine side effects are exceedingly rare, a parent may still worry about the potential.

We look for confirmation. We look for validation. We look for reassurance. We take it where we get it.

While most of us are able to intellectualize and rationalize the extreme benefit of vaccination, some of us have more difficulty overcoming the fears. When we’re having difficulty, the reactions of others can make all the difference in the world.

Who listens to our fears with empathy? Who rolls their eyes? Who sighs with exasperation? Who ridicules our fears? Who explains and educates? Who gives us time?

Although correlation does not imply causation, our tendency is to infer causation from correlation. We are suggestible. Although large scale data gives us significantly more information than a few anecdotes, we tend to remember and hang on to stories. When we are given some information we know to be correct, we are more inclined to believe accompanying information from the same source, whether or not that accompanying information is valid.

These tendencies, coupled with who is responding to a person’s fears (and how they are responding), will influence whether someone who is afraid will go in one direction or the other.

There was a recent study  that looked at information intervention to see how it affected parental attitudes on the MMR vaccine. For this study, parents were given a questionnaire which included questions on how likely they were to have their future children vaccinated with the MMR vaccine, whether they thought certain vaccines caused autism, and how likely they thought it was that someone would suffer serious side effects from the MMR vaccine. They were then randomly assigned to five groups. One group received information (from the CDC) explaining the lack of evidence that the MMR vaccine causes autism. The second group received text from the official Vaccine Information Sheets explaining the dangers of the diseases against which the MMR vaccine protects. The third group received pictures of children with measles, mumps, or rubella. The fourth group received a dramatic story (from the CDC) about an infant who almost died from measles. The fifth group was the control group – they received no vaccine information intervention materials, but were instead given reading on the costs and benefits of bird feeding. The parents were then given a second questionnaire which included the three specific questions mentioned above.

The results of this study showed that none of the interventions increased a parent’s likelihood of having a future child immunized with the MMR vaccine. The autism-vaccine corrective information did decrease the respondents’ beliefs that there was a link between vaccines and autism, but it also decreased the respondents’ future likelihood to vaccinate (mostly in the group of parents who originally held the least favorable view of vaccines). The dramatic story of the infant with measles increased the perception that the MMR vaccine has serious side effects. The pictures of ill children increased the parents’ likelihood of saying that some vaccines cause autism.

I don’t find the above results surprising, nor do I find them particularly discouraging, although headlines in response to its publication were generally along the lines of “You Can’t Change an Anti-vaxxer’s Mind” (that one was from the Mother Jones blog). The above study looked at four different “spot” information interventions. It did not look at comprehensive education, communication techniques, nor empathy of information providers – it simply provided limited, unifocal written materials. It is not fair to say, from the results of this study, that people scared of immunization cannot be reached.

If I had been a parent in this study given a story to read of a sick child, or had been given alarming pictures of children with measles, mumps, and rubella, I might then go to my computer and do a quick search on those diseases. While doing so, I would very likely come across websites promulgating false information about dangers of the MMR vaccine or quoting the (fully discredited) study linking the MMR vaccine to autism. I also might have thought, “Why are they trying to scare me about these diseases? Maybe they think they need to scare me because the vaccine is dangerous.” I wasn’t given information on the safety of the vaccines. I wasn’t told details about potential side effects. I wasn’t given an opportunity to ask questions.

Communication is critical. Comprehensive communication is critical. Empathy is critical.

The costs would likely be prohibitive, but it would be nice to set up a study (with the same questions looked at in the above study) where people with negative attitudes towards immunization were identified, where they were randomized to an intervention group where a doctor listened to their fears, addressed their concerns, quantified the risks and benefits of vaccination versus the diseases themselves, provided trustworthy further sources, and explained which sources were not scientifically trustworthy and why, all while maintaining an empathetic demeanor; a group where the above was done in an arrogant/ridiculing manner; and a control group where a doctor discussed the benefits of wearing a bicycle helmet. How might people respond then?

The anti-immunization community (both physical and internet) provides empathy. They tend to be comprehensive in their information (albeit false). They define the enemy (enemies). They pull people into their fold, making them feel a part of a valued and cared-for community.

Calling people names will not pull people back from a group that’s making them feel welcome and supported.

Again, the majority in this country understands the science behind immunizations, trusts the medical and science establishments, and immunizes their children against dangerous communicable diseases. People who are wary of immunizations are not trusting the overwhelming consensus of physicians. If they are already pulling away in some thoughts from the medical world, why would anyone think that insulting them would help pull them back?

A piecemeal approach of a written form here, a scary story there, or some random disease photo is also not likely to pull anyone back, nor is an internet meme with a snarky comment or comparison.

Memes make points or sum up arguments with a picture and just a few words, frequently with an element of humor. I frequently appreciate the humor and the analogies made when the memes are pro-vaccine. But when I look at those of the anti-vaccination type, it hammers home just how lacking a meme is. It may pack punch, but it lacks depth. It lacks nuance. It lacks explanation that addresses questions or concerns.

This is not to say that the memes are useless. They generally serve to support/confirm/validate what people on one side or the other already understand or believe. They also, by serving as an indicator of what someone posting the meme thinks, contribute to defining norms. So it is helpful for Facebook to have a preponderance of pro-vaccine posts, since it helps cement immunization as the acceptable/preferable thing to do, and it is possible to do this with humor, with analogies, and with respect. It is helpful for people to respond to/refute anti-vaccine posts in a respectful, empathetic, honest, respectful, non-condescending manner.

Here is my official, as-a-doctor stance on vaccination:

Vaccines save lives. Vaccines are not perfect, but the ones that we have now have been proven overall safe and effective. We’ve come a long way since the first documented attempts to immunize. Variolation for smallpox – rubbing material from smallpox sores into people’s skin to induce a cutaneous case of the disease which was milder than the normal variant and conferred immunity to the more severe infection – has evidence of being performed in China 1000 (yes, one thousand) years ago, and was practiced in Asia, Africa and Europe from the 1600s through the 1700s (see historyofvaccines.org). Our vaccines and their manufacturing process have been refined and improved remarkably over the past two centuries. All of our present-day science overwhelmingly indicates that the benefits of our current vaccines vastly outweigh the risks. This does not mean that the risks of vaccination are zero, but they are ever so much lower than the risks of not vaccinating.

Choosing not to vaccinate has risks not only to those who refuse to vaccinate but to others in the community as well. Doctors and medical researchers read studies, discuss findings, analyze quality of research, and continually ask questions to direct further lines of inquiry. As new information becomes available and as better methods evolve, we update recommendations and practices accordingly. All of our best available current information leads me to recommend immunization.

Immunize yourselves. Immunize your kids. And if you still have concerns or questions about vaccines, ask them of your physician. If you feel you are not being answered respectfully by your doctor, calmly and respectfully point this out, and ask again.

If you are a doctor and there seem to be multiple patients in your practice with similar vaccine concerns, hold a few group talks to openly address the concerns and share your knowledge with multiple people at once. Make a video addressing common concerns, make it comprehensive, include analogies, show appreciation for concerns as you discuss them, and put it on your website. No matter how exasperated you may be with the whole anti-vaccination issue, show empathy, kindness, and compassion to those with fears. Teach your patients, and don’t chase them away with outward manifestations of your frustrations.

Let’s live beyond the memes.

 

Following the Trails

Our family loves to hike. Traveling the trails is a deeply happy place for us. In fact, I don’t think there’s ever been a time when one of us suggested taking a hike and everyone didn’t unanimously and enthusiastically agree. A few weeks ago, my family took a lovely hike in a state park in Massachusetts. It was a gorgeous day – temperature in the upper 40s, blue skies, no wind. The hub of trails started at a large, beautiful pond. There were large hills in every direction (which we really miss in general since we live in a fairly flat region in the Midwest), and the trails were dry since we hadn’t had rain in a couple days.

We checked out the big map at the trail head and picked up a small folded guide to bring along with us, as there were so many choices and branchings of paths along the way. Both the large wooden and the small paper maps said, as pretty much all maps/guides in any hiking area say, to stay on designated trails both for personal safety and for protection of the land.

We started out along the perimeter of the pond, where most people were walking, and then headed away from the water on a path to see some cliffs. After a short while, we noticed that the path was not well-marked. It was easy enough to follow at the beginning as the cut through the trees was fairly obvious, but as the trees thinned it became more difficult to discern exactly where the trail was. A thick carpet of leaves was everywhere, and since it was early winter there were no ferns or other greenery growing where the trail wasn’t.

All five of us are good with maps and with judging relative distances. The guide we had showed various bodies of water as well as contour lines of changing elevation. With some work, we managed to figure out how to get to each subsequent destination along the trails on our afternoon’s journey in spite of the lack of trail markings. It was a lovely little adventure and a delight to be out in the woods.

But I couldn’t help but think about how disconcerting this could be to someone who wasn’t a seasoned hiker, who wasn’t familiar with topographical maps, and who was travelling alone or with young children. The signs said to say on the trails, but the sign-makers neglected to mark said trails. When you tell someone to stay on a trail, you can’t assume that someone will know where the trail is. You need to provide trail markers.

People frequently use the phrase “blaze a trail” metaphorically to indicate that someone is the first person to do something and that others will follow. However, the actual meaning of “blazing” a path is that someone is providing markers to be used by others to follow that path. It’s not just finding and knowing the way, but helping others find the way as well.

This is the case in medicine. Doctors can’t just tell their patients to do something without explaining in detail the hows, whys, whats, wheres, and whens. A doctor might know what a general piece of advice entails, but a patient could be figuratively lost in the woods without a mark in sight on any tree in any direction.

“Cut down on your sodium intake.” “Take this medication twice a day.” These concepts may be clear and precise to the doctor, but may be vague and unclear to the patient.

Doctors must describe the setting – the situation and what’s happening. They need to describe the different paths, landmarks along the way, and tips for getting through/over/around the difficult parts. They need to describe what to do if their patient wanders off the path – how they can find their way back if they can and how to reach help if they can’t do it themselves.

“Sodium is an element in salt that causes your body to hold onto more water than it needs, and because you have early heart failure it’s important for you to make sure that your body doesn’t have too much fluid. The medications you’re taking help, but your diet is important, too. For the next two weeks, try to prepare all your meals at home – I know you and your wife love to cook together! Don’t add salt to anything. Here’s an example of a nutrition label – see where it says “sodium”? Try to make sure that the total amount of sodium on anything packaged that you eat throughout an entire day doesn’t add up to more than 1500 mg. This is hard to do, and it will probably force you to avoid a lot of pre-packaged foods. If you have difficulty with this, I’ll help you set up an appointment with a medical nutritionist. Feel free to call me with any questions, and I’ll see you back here in two weeks.” Blaze the trail well.

Patients need to make sure they have detailed maps with them, an understanding of how to read those maps, knowledge of what the trail markers look like, hiking partners, and ways to reach help when needed. If their doctors have not been clear and comprehensive, they need to ask for clarity and comprehensiveness.

“When you say to take this medication two times each day, does that mean exactly 12 hours apart? If not, what is the rough window of time that’s ok? Should I take it with food or on an empty stomach? Are there any side effects I should watch for? Do I take the medication all the time, or only when I feel like I need it? Is there anything specific I should or should not do while taking this medication? Should I direct further questions to you or to my pharmacist?” When people point out that a trail is not well-marked, the park rangers will improve the trail blazing.

Maps. Markers. Trails. Skills. Partners. Guides. Communication. Enjoy your hiking!

 

 

A Little Less Zen in the Shoveling but Still Good

The coolness of the crisp, clean air, the beauty of the blanket of fresh snow, the quiet of the early morning, and the satisfaction of having cleared my own family’s and my neighbors’ walks and driveways.

The soreness of my shoulders, the frozenness of my fingers and toes, and the overall tiredness of me.

The timing of our last two snowfalls were such that I was the only one around to shovel. I love to shovel snow, actually. I find it peaceful and satisfying. In fact, one of my very first posts was about shoveling snow (Zen Shoveling). But sometimes I get a little grumpy. Like when the plow pushes that heavy stuff over the end of the just-shoveled driveway. And when it’s really cold.

I’m a couple years older than when I wrote the first piece. I tolerate the uber-frigid temps a bit more grudgingly. I now follow a bit more the advice I’d give my patients – bending at the knees, not reaching/leaning when lifting, dumping rather than throwing the snow, taking frequent rests, just generally listening to my body.

It turns out that my body has plenty to say. Like, “Put your hood up, Dummy.” Amazing how much warmer a hood or a hat makes you.

And “You’d better start shoveling on the other side, or this arm is going to fall off.” Gotta remember the balance.

And “Yes, you’re in a groove, but it’s been over two hours and if you don’t stop soon you’ll regret it later.” Right. Later. I forgot about later.

A warm bowl of oatmeal post-shoveling. A hot shower. Some slow stretches.

Some mild soreness for a day or two – a reminder of the workout.

Beautiful views outside my windows of the white blanket of snow, marked with the footprints of rabbits, birds, squirrels, and some larger animals whose prints I can’t identify.

Enjoying, but wouldn’t complain if spring came on the early side this year…..

 

Christmas Wishes

For those who celebrate Christmas:

May you be surrounded by people you love, or at the very least, may you be awash in happy thoughts of those you love.

If it is (or has been) raining rather than snowing where you are, may the water serve as a symbol of birth and life.

May the children in your life be smiling today.

May you feel hopeful.

May you feel content.

May you feel comfort in your old traditions and excitement in the new.

For those who do not celebrate Chrismas:

May you enjoy the beauty of the lights on and in your friends’ and neighbors’ homes.

May you enjoy and embrace the sentiments of peace on Earth and good will toward men (and may the term “men” apply to all humanity).

May you enjoy a brief break from the normal hustle and bustle of daily life.

For those who are working today:

May you feel satisfied in knowing that you are helping others to enjoy their holiday by covering for them.

Healthcare workers, police officers, firefighters, and others whose work does not respect the calendar in any way – may you know deep down that your work both saves and touches the lives of not only those you serve directly, but of everyone whose lives are touched by those you serve.

Merry Christmas.

An Appalling and Alarming Devaluation of Life

I received an email earlier this fall from someone very close to me – a psychiatrist, in her mid-60s, extremely intelligent, level-headed, non-reactionary, balanced, rational, and even. She tends to be somewhat progressive and mildly left-of-center on social issues. She sent me the link to Ezekiel Emanuel’s article in the Atlantic, “Why I Hope to Die at 75”, and she expressed significant concern.

I also tend to be somewhat progressive and left-of-center on social matters, reasonably level-headed, and non-reactionary. I found the article to be chilling.

I provide the brief background on our personalities and social-issue political leanings very deliberately. You need to know who is alarmed here, because my article is about to sound like it was written by a right-wing pundit with paranoid tendencies. It was not.

The piece in The Atlantic invokes fears far beyond those of death panels (which, as unacceptable as such a concept is, at least imply that there are some decisions to be made as far as who might merit the resources to have life-saving treatment). Dr. Emanuel’s article sets the stage for an expectation that people’s health is not something for which society should pay at all once they have reached a specified age (the specific age he chose is 75). No need for a death panel – you just need access to a person’s date of birth. He repeatedly uses the term, “American Immortal,” to imply that the idea of living healthily into old age is unrealistic, selfish, and greedy. He steps so far over the line with his stated “personal” preferences that the rest of us won’t be able to help but view the government as magnanimous when it generously allows Medicare to cover an antibiotic for a 76-year-old. I am afraid that Dr. Emanuel aims to be so outrageous in his arguments that a slight step back will be viewed as reasonable.

His points of persuasion reminded me of an Onion article from the late 1990s, when Dr. Kevorkian was frequently making headlines (“‘Vehicular Manslaughter Doctor’ Assists in 23rd Doctor-Assisted Vehicular Manslaughter”). The Onion writers are able to make anything funny – even a subject such as assisted suicide. Their satire in this particular article goes over the top in its farcical quotes depicting the suffering of people (for example, having to put on a special pair of glasses just to read) whom they are putting out of their misery by running over with a car. Dr. Emanuel’s depictions of the infirmities of those 75 and older are frequently as preposterous as those of The Onion (for example, one of his instances of something horrible to be enshrined in the memories of someone’s children or grandchildren is that person’s having to ask what someone else said – seriously, he implies that it’s better for a person not to have a memory of a grandparent who has some hearing loss). To be fair, Dr. Emanuel does not advocate direct homicide of those 75 and older, but he most certainly promotes shoving them out of the healthcare world onto a proverbial ice floe. And rather than being funny, the seriousness of his dissertation is simply horrifying.

His position is coldly utilitarian. He establishes any loss of functionality, productivity, or creativity as making the world smaller, of being no way to live or to be remembered. So he recommends that people die first, before losing any functionality, productivity, or creativity. I certainly would not want to be the in-any-way-less-than-perfect family member of this guy.

Dr. Emanuel puts forth that those 75 and older already have grandkids or even great-grandkids, and their continued existence overshadows the next generation down. I would put forth that a little therapy would go a long way towards resolving such psychological issues for someone who feels he is not able to achieve his rightful position as patriarch, and I would put forth that such therapy would be significantly preferable to killing off one’s parents.

Speaking of killing people off, it also shocked me that a physician would take the medically unsound (from a population/public health standpoint) stance that after a certain age he would refuse a flu vaccine. Is this so he can pass influenza along to infants, other elderly people, and those with weakened immune systems, so as to efficiently thin the herd and more quickly reduce their financial burden on society? There are creepy parallels to both The Giver and Children of the Corn.

On Ezekiel Emanuel’s website, there is a big quote screaming from the homepage (www.ezekielemanuel.com): “Zeke Emanuel is a force of nature. Author, ethicist, cook, medic, policymaker: he makes other over-achievers look lazy and inadequate. There are very few policy experts – in health care or any other field – with Zeke’s smarts, political antenna and persuasive powers.” This man is a member of the academic and political elite. One of the architects of the Affordable Care Act (ACA or “Obamacare”), he is in the healthcare policy inner circle. His words do not die on the page. People in positions of power are listening to this man.

He sets up a false choice of being a sickly immortal-wannabe or forgoing all medical care at a predetermined age. He puts forth what is either his own fear of not being at his peak or what is his politically calculated and expedient depiction of old age as a universal “succumbing to that slow constriction of activities and aspirations,” and thereby devalues any life that is not at his defined “peak.”

This man is an ethicist. His ethics are unnerving.

I asked my youngest son to read the article and tell me what he thought about it. He is still two months shy of turning 14. I’ll stipulate that he is a smart 13-year-old (he has two smart older brothers to learn from), but still – he’s 13. Here’s his response:

“There’s a lot of wrong stuff in that article. He makes it sound like getting old is bad and that life is less worth living when you’re old. He’s wrong. As you get older, you know more and more about life, so you live it more clearly. You’re wiser. So what if you slow down a little? And what’s wrong with listening to books and doing puzzles? He said it was bad for people to have memories of someone older or weaker. He sounds like he just wants to shove old people out on an ice floe.” So I wasn’t the only one who had that ice floe image. “And that thing he said about older people overshadowing younger ones – that’s just messed up.”

I then asked my son if it sounded like the author was just stating his own personal opinion. He answered, “Actually, it sounds like he’s trying to convince other people of what he’s saying under the guise of it’s being his own opinion.” Out of the mouths of babes. He’s a high school freshman and he wasn’t fooled.

My son asked who this author is. I told him that he’s a very influential doctor involved in healthcare policy. He replied, “that’s scary.”

Listen to the kid.

Because Ezekiel Emanuel is a member of the political elite, he will have the prerogative to “change his mind” and access healthcare when he’s older than 75. But when his words have been enacted into policy, the rest of us won’t have that option. This man’s words and his position of influence combine to seriously threaten our right to life, liberty, and pursuit of happiness. Do not let him force anyone to go gentle into that good night before they’re damn good and ready.

I cannot dismiss his article as the musings of a madman. His words appear to be the cold, calculated attempt at the social engineering required to decrease our country’s medical bills in a deeply disturbing manner. They are a set-up to “well, if Ezekiel Emanuel is totally healthy and strong and climbing mountains in his late 50’s and declares that he should be dead in less than 20 years and not using up money for healthcare, then who is someone with (arthritis, diabetes, any ailment of any kind) to demand care? Why should we give a new hip to a 70-year-old? Why should we treat cancer in someone in their 60s?” I hope every member of the AARP (and every one of their family members, and anyone who is in or someday plans to be in that demographic) reads Dr. Ezekiel’s article. And I hope they read mine.

Do not let this man have the last word. Do not let him smile sweetly and innocently as he sets the stage for a “there will be no coverage for chemotherapy (or dialysis, or ICU care, or hip-replacement surgery, or medications other than painkillers…) after age (whatever seems like a number likely not to cause a huge outcry)” policy enactment. Let the outcry be heard now. Let it be huge. Keep your eyes and ears open. Follow what policy makers and policy influencers are saying and know who your elected officials are listening to. Keep reading what Ezekiel Emanuel writes. Keep up the outcry as necessary and keep it loud. Do not underestimate the power and influence of his words, or the power and influence of your own.

 

Fighting Preconceptions

We all have prejudices. We have racial prejudices. Religious prejudices. Gender prejudices. Occupational prejudices. Age prejudices. Weight prejudices. Height prejudices. We prejudge based on hair style. Language. Accent. Clothing. Shoes. Attractiveness. Tattoos. Names. Jewelry. Family. Hobbies. Cars. Schools. Type of home. Music. Where a person lives. What type of work a person does. What a person reads. Talents. Disabilities. Physique. Medical history. Injuries. Opinions or assessments by others.

No one is immune to prejudice. We have evolved to formulate split decisions. Malcolm Gladwell’s bestseller, Blink, focuses on the quickness of our decisions, on our prejudices, and on some ways to work around the prejudices. Our hard-wired tendency to prejudge is unavoidable, so we need to recognize it in order for it not to control us.

We need to get beyond our first thought and continue thinking. We need to figure out where the first reaction came from and check ourselves. We need to listen and to keep listening. We need to constantly reassess. Especially when we are in positions of power.

Police officers are in positions of power. Doctors and nurses are in positions of power. The prejudices of all of us have the potential to cost a person his or her life.

Defend and protect. First do no harm. We take these oaths and are bound to do what we can to uphold them. But sometimes we need to fight ourselves to do so.

A prejudice may cause a police officer to see a threat when there in actuality is no danger. A prejudice may cause a doctor to dismiss cries of pain as histrionics. A prejudice may cause a nurse to dismiss a family member’s report of a problem as whining. And once any one of us makes this initial presumption, we can kill someone if we don’t catch ourselves.

Those of us with people’s lives in our hands cannot stop at that first impression, Yes, a first reaction may very well be correct, but we must be diligent in our thought processes so that we don’t stop with that first thought. We cannot be too proud or stubborn to admit when our first thought is wrong. We have to keep listening.

When someone says “I’m in pain,” we need to listen. When someone says “I can’t breathe,” we need to listen. Maybe the person at first glance appears to be able to breathe, or not to be in so much pain, but we cannot risk ignoring those statements. Ever.

We cannot let our our desire to be respected get in the way of our oaths. We cannot let our drive to be seen as the one in-the-right to get in the way of true righteousness. We need to be bigger than that.

We need to remember that to save a life is to save the world, even if it means we might look like we lost or have to admit that we were wrong. We’ll win in the long run when we maintain our oaths.

First do no harm. Serve and protect. Command respect by showing it. Always remember that because we are human, we must go beyond the first thought. We owe it to humanity.